Jayla
Age 6
University of Missouri Children's Hospital
Cystic Fibrosis
Jayla begins and ends each day playing with her dolls and watching cartoons. Believe it or not, this is actually part of her daily therapy routine to minimize the effects of cystic fibrosis. Although her condition affects her daily, she realizes it’s just a small part of who she is.
Prone to infections caused by bacteria in her lungs, Jayla has had several stays at the University of Missouri Children’s Hospital battling parainfluenza, pneumonia and other lung infections.
Jayla loves educating others about her condition. In addition to sharing her story with the media, she’s been known to stop complete strangers on the street to teach them about cystic fibrosis and how they can help kids like her. Though small, Jayla is making a big difference with her confidence and enthusiasm.
Wednesday, April 25, 2012
Children's Miracle Network Hospitals Champions
Champions is a Children's Miracle Network
Hospitals program that brings attention to the important work being done at its
170 children’s hospitals. It does this by honoring 54 remarkable kids who have
faced severe medical challenges, and helping them tell their stories.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
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